Current Research Projects
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LIMB-Q Kids - A New Patient Reported Outcome Measure
Aim: To develop an internationally applicable patient-reported outcome measure for children with limb differences.
Our team is working directly with patients, families, experts in PROM development, quality of life, surgeons, and other healthcare professionals from Australia, Canada, Denmark, Ethiopia, Finland, Germany, Kenya, Nigeria, India, Saudi Arabia, Uganda, UK, and the USA to develop this new PROM called LIMB-Q Kids.
Once fully developed, LIMB-Q Kids will measure what matters most to children and adolescents with lower limb differences.
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Observational Study of Children with Limb Deformities/Limb Deformity Database
Aim: To prospectively record outcomes of various treatment procedures for children with limb deformities. This study will enable us to compare time in corrective frames, number of surgeries, and complications and help us determine any changes required in our ongoing clinical care.
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Global POISE
Aim: To understand the health outcomes of pediatric orthopaedic implant devices and evaluate their safety and efficacy. This registry is multi-centre and collaborative with many sites around the world.
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Multicentre Pin Site Infection Study
Aim: To investigate the rate of pin site infections, factors contributing to pin site infection and pin care procedures across centres in Canada, the U.S., and the U.K.
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International Limb Differences Registry (ILDR)
Aim: To capture the full spectrum of diagnoses leading to limb differences through a prospective, global registry.
Actively recruiting subregistries: Morquio B, Osteogenesis Imperfecta, Musculoskeletal Infections
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Knee Instability and ACL Deficiency in Fibular Hemimelia and Congenital Femoral Deficiency: Prevalence, Functional Impact, and Treatment Outcomes
Aim: To analyze knee instability and ACL reconstruction to help physicians understand whether surgical management is required for treating knee instability and to minimize risk for subluxation.
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Measuring What Children Like or Dislike About Their Prothesis
Aim: To develop a patient-reported outcome measure to assess satisfaction with prostheses in children with amputations and limb differences.
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Toys Representing Limb Differences
Aim: To explore the views and experiences of children with limb differences and their parents on inclusive (representative) toys.
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Prevalence of body image dissatisfaction among youth with lower limb differences
Aim: To investigate the relationship between the way youth with lower limb differences feel about the appearance and function of their leg, and their overall body image satisfaction.
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AI Project - Limb Alignment Calculator
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AI Project - Ortho Assistant
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AI Project - Automated Identification and management guidance of pediatric elbow fractures
Previous Research Projects